Having POTS (Postural Orthostatic Tachycardia Syndrome) is a tricky thing to deal with but having POTS
with a heart condition is even worse. Last night I had a “POTS Crash.” I woke
up during the night feeling very unwell. When that happens the first thing
to do is check blood pressure…mine was 79/48. When I was first diagnosed my
Cardiologist told me anytime my blood pressure went under 100 I needed to go to
the hospital. I told him I would be camping there quite a bit then. So he
almost made me promise that if it went below 90/60 I would make the trip in.
Last night surely met the criteria and yet I felt too bad to move or walk.
The next two hours we tried all the “home remedies” I could
think of that my Dr. gave me. Push fluids and drink a coconut water (which contains
500mg potassium) etc. while checking my pressure every few minutes. But then
the matter became more complex. My heart obviously didn’t like my blood
pressure being so low and it started having spasms. Now besides having very low
blood pressure I also was having sharp pains in my chest and in my back between
my shoulder blades. The typical solution for this would be to take a Nitrate
under my tongue but I’m not allowed to take one unless my blood pressure is
over 100 so that was out. The thought then arises…Is the affected artery still
clean or is there enough plaque buildup in it that this would lead to a full
out heart attack. All we could do was stay very calm and relaxed and hope
things would turn around me (all the while knowing that I have my Cardiologist’s
cell phone number in my cell phone in case things would get worse). Remembering that when I’ve
had surgeries and my blood pressure dropped they would also tilt my bed with
the head down and feet up we tried that as well.
After 2 ½ hours on this tightrope things started improving
and my blood pressure hit 92/58. Now I was getting more in my “normal” range
although feeling a bit weak and left with a fairly intense headache. I was so
thankful that we didn’t have to go in…as belonging to a POTS support group I read
about so many people who are in and out of the hospital. In fact some people
are getting ports so that they can do their own IV at home during a “crash”.
Why do I share this with you?
First of all when people ask me how I am and I reply “stable”
that is a very good thing...I love stable. We never know when these will happen
and this is only one type of side effect of having POTS. Whenever I travel I have
to be ready and prepared if this would happen…its my new life.
Secondly, we all know that we are walking with a fine string
separating us between life and death but I am very keenly aware of this fact. This
morning as we were eating breakfast it really hit me how serious the matter
could have gotten and how I was able to remain so calm through it all.
I don’t really like writing blogs about my own health issues
but this morning I just wanted to give you a little window into what life with
POTS and Coronary Artery Spasms can look like. It’s not an easy life…but it is
a life dependent on the Lord Day by Day.
Day by day, and with each passing
moment,
Strength I find, to meet my trials here;
Trusting in my Father’s wise bestowment,
I’ve no cause for worry or for fear.
He Whose heart is kind beyond all measure
Gives unto each day what He deems best—
Lovingly, its part of pain and pleasure,
Mingling toil with peace and rest.
Strength I find, to meet my trials here;
Trusting in my Father’s wise bestowment,
I’ve no cause for worry or for fear.
He Whose heart is kind beyond all measure
Gives unto each day what He deems best—
Lovingly, its part of pain and pleasure,
Mingling toil with peace and rest.
Every day, the Lord Himself is near
me
With a special mercy for each hour;
All my cares He fain would bear, and cheer me,
He Whose Name is Counselor and Pow’r.
The protection of His child and treasure
Is a charge that on Himself He laid;
“As thy days, thy strength shall be in measure,”
This the pledge to me He made.
With a special mercy for each hour;
All my cares He fain would bear, and cheer me,
He Whose Name is Counselor and Pow’r.
The protection of His child and treasure
Is a charge that on Himself He laid;
“As thy days, thy strength shall be in measure,”
This the pledge to me He made.
Help me then in every tribulation
So to trust Thy promises, O Lord,
That I lose not faith’s sweet consolation
Offered me within Thy holy Word.
Help me, Lord, when toil and trouble meeting,
E’er to take, as from a father’s hand,
One by one, the days, the moments fleeting,
Till I reach the promised land.
So to trust Thy promises, O Lord,
That I lose not faith’s sweet consolation
Offered me within Thy holy Word.
Help me, Lord, when toil and trouble meeting,
E’er to take, as from a father’s hand,
One by one, the days, the moments fleeting,
Till I reach the promised land.